Patient and Caregiver Support
As part of the Ivy Brain Tumor Center’s mission to support brain tumor patients, we are expanding the services available to the local and regional community of patients and caregivers. New services will include specialized support groups, financial counseling, social work, and telemedicine consultations. Our patient navigators are experienced with the challenges that brain tumor patients face, particularly when they are participating in a clinical trial.
Arizona Brain Tumor Support Groups
Many people find that talking with others in a similar situation can help with the stress. It can also provide useful insight and refreshing perspectives.
Barrow Brain Tumor Support Group
Our Brain Tumor Support Group provides a supportive setting for open discussion. Each group is led by a peer facilitator (a survivor or a family caregiver) who understands the challenges you may be facing. Some meetings feature a guest speaker. The Brain Tumor Support Group is open to individuals with brain tumors, their family members and friends. Participants will meet others in similar situations, discuss individual problems, ask questions, and learn new information about a variety of topics.
Fourth Tuesday of the month
From 6:00 pm to 7:30 pm (Arizona Time).
Located in the Sonntag Pavilion.
DOES NOT MEET: May, November, December
Refreshments will be provided.
Contact:
Jaclyn Garcia:
Group facilitator
(602) 406-4429
Email
Lanette Veres:
Group facilitator
(623) 205-6446
Email
Brain Tumor Survivor and Caregiver Symposium
This is a day dedicated to bringing brain tumor survivors and their caregivers together to learn about the latest treatments, coping mechanisms, and symptoms management after brain tumor diagnosis. Attending these events is also a great way to connect with other survivors and caregivers. Topics vary from each event, which we host twice a year, once in the spring and once in the fall, on the St. Joseph’s Hospital and Medical Center campus.
Contact:
Jaclyn Garcia:
(602) 406-4429
Cancer Support Community Arizona
The Cancer Support Community provides a full range of support programs at no cost for people with cancer and their loved ones in a comfortable home-like setting. It offers drop-in and ongoing support groups led by professionals. It also offers networking groups for people with specific types of cancer, educational workshops, exercise activities, stress-management sessions, lectures by experts in the field of oncology, and social gatherings—all while helping people maintain a sense of humor, joy, and hope.
360 East Palm Lane
Phoenix, AZ 85004
Barrow Connection Outreach Program
Barrow Connection is committed to enriching the lives of children and adults with neurological disabilities by facilitating health, sports, education, resources, wellness, recreation and conferences.
Individual Support
Gray Matters Foundation
The Gray Matters Foundation is the Ivy Brain Tumor Center’s official patient support partner. Gray Matters is dedicated to love, kindness, and the celebration of life. This foundation supports each patient as an individual.
Second Wednesday of the month (VIRTUAL)
From 4:00 pm to 6:00 pm (Arizona Time).
DOES NOT MEET: May, November, December
Please reach out to Lanette for details at least 2 days in advance.
Arizona Palliative Home Care
Home health services for adult patients who are mainly homebound.
Program benefits include:
- Coordination of care
- Rehabilitation therapy and services
- Education and family caregiver support
- Community resource referrals
- Support from a nurse 24/7 by phone
1510 E. Flower Street
Phoenix, AZ 85014
Contact:
Brain Tumor Organizations
American Brain Tumor Association
This nonprofit association is dedicated to support, research, and education of patients and caregivers across the U.S. Educational material is available for free on their website.
Brains for the Cure
Brains for the Cure is a program intended specifically for patients and caregivers. This program serves as an online navigator to assist with coping, managing and understanding the overwhelming feelings that come with a brain tumor diagnosis. Brains for the Cure offers the brain tumor community a level of understanding that meets them exactly where they are and lets them know they aren’t fighting alone.
More Info:
Brain Injury Alliance
The Brain Injury Alliance of Arizona is a social benefit organization dedicated to creating a better future through brain injury prevention, advocacy and education. Their support groups provide survivors of brain injuries and their family members emotional support for improved lives. With this group you will be able to share concerns and information with others who understand your perspective. Lessen your fears through group discussion and education.
More Info:
National Brain Tumor Society
National Brain Tumor Society is the largest, most influential nonprofit that is fiercely committed to finding better treatments and driving rapid progress toward a cure for brain tumors. They drive a multifaceted approach to aggressively influence and fund strategic and collaborative research, and advocate for public policies in order to achieve the greatest impact, results and progress. Education material can be downloaded from their website free of charge.
More Info:
International Brain Tumour Alliance
The International Brain Tumour Alliance (IBTA) is a unique global network for brain tumor patients and carer groups around the world. They work alongside, and represent, members of the brain tumor community- including researchers, scientists, clinicians, nurses and allied healthcare professionals- to engage in advocacy, to raise awareness and to share information.
More Info:
