Ivy Blog
Brain Tumor Talk Ep. 3: Glioblastoma Awareness Day Special
In honor of Glioblastoma Awareness Day, the Ivy Center proudly presents a heartfelt episode of the Brain Tumor Talk podcast. Join host Michelle as she engages in an open and honest discussion with Carol, Amber, and Heather— an insightful panel of patients and caregivers who share their unique journeys through the challenges of glioblastoma.
Carol reflects on her diagnosis: “It was like a punch in the gut.” Amber describes her initial reaction: “Denial. No, this doesn’t happen to us.” Heather shares the emotional impact: “The wind was sucked out of my lungs.” Michelle adds: “It came out of left field for us.”
While their diagnoses connect them, each woman’s journey is unique. Carol, a patient diagnosed just a year ago, and Heather, a 20-year survivor, explain how their treatment paths evolved when the standard therapies fell short. Caregivers Amber and Michelle shared a real look at what it’s like to watch a loved one go through the disease and manage the deficits it causes.
Together, they discuss the most unexpected challenges in their glioblastoma journeys, such as struggling with or forgetting how to do daily tasks. Despite the difficulties, these women share powerful stories of love, inspiration and hope.
Their mission is clear: to raise awareness about glioblastoma and advocate for increased funding and research, with the hope that their collective efforts will one day lead to a cure. Listen in for a raw and vulnerable conversation that sheds light on the realities of living with glioblastoma.
In this GBM Day Episode, You’ll Hear
- The symptoms each panel guest experienced
- Their unique treatment plans
- How a brain tumor changed their perspectives
- Advice for other patients and caregivers
What to listen for:
5:25: Reactions to the diagnosis
7:00: The decision to enroll in a clinical trial
8:15: Heather’s failed clinical trial
10:45: Finding information about glioblastoma
13:50: Approaching a care plan
16:29: Mindset shifts during the diagnosis
20:19: A caregiver’s perspective
22:33: Managing emotions
25:00: The reality of survivor’s guil
26:27: Advice for newly diagnosed patients
27:52: Surprising discoveries
32:50: Bringing awareness to glioblastoma
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